Personal Victory Stories
Proud Hands Book
Get your copy for $15 and show your proud hands
Get your copy for $15 and show your proud hands
People often view Parkinson’s disease as a handicap. But for the people featured in “Proud Hands,” and countless others who live courageously, life is a celebration of daily victories. The snapshots below demonstrate the kind of creative and inspirational things that people living with PD can — and do — accomplish every day.
What daily victories do you celebrate?
Like the people featured in “Proud Hands,” we encourage you to
pen your story about living well with PD. Share your stories and photos
about the activities you enjoy as a way to encourage others!
Bill Hillman’s life revolves around physical activity. As a retired coach, athlete and health and physical education teacher, Bill is an expert at maintaining a fit lifestyle. Even living with PD, Bill makes exercise a priority. Read more >>
Since his diagnosis in 1997, Bill uses self-designed exercise programs to manage his PD symptoms and build strength. He even produced exercise videos http://www.youtube.com/watch?v=FW5fNun0mUc specifically for other people living with PD, and shares them nationwide. From squeezing a tennis ball to picking up stones – even the smallest of movements help improve coordination. Bill’s motto? “Stick with it! Exercise will make a difference.”
Bill’s story is featured in "Proud Hands." If you would like to read Bill’s full story, please learn more about getting a copy of the book.
Cheryl Majeske’s life is in motion. She competes in sprint triathlons, even entering the Virginia Senior Olympics. And, because she’s committed to high-intensity exercise, the National Senior Olympics is next. The most incredible part is that Cheryl accomplishes all of that despite PD. Read more >>
Even when Parkinson’s hit, Cheryl, from Quinton, Virginia, couldn’t just sit. A lifelong athlete, she felt compelled to exercise. From taking fitness classes to challenging herself to improve her already remarkable competition times, she pedals to fight the symptoms of PD. Cheryl encourages others with Parkinson’s to join her in putting PD in their past.
Cheryl’s story is featured in "Proud Hands." If you would like to read Cheryl’s full story, please learn more about getting a copy of the book.
Life has opened its doors to new and unusual accomplishments since Judy Hensley, of Johnson City, Tennessee, was diagnosed with PD in 2002. Besides making key decisions and learning ways to better cope with the disease, she considers other people living with Parkinson’s to be a huge source of inspiration. Read more >>
She’s acquired many friends, through both local and online support groups, on her quest to give others hope. Judy also is proud to have participated in numerous walks, including the Parkinson’s Unity Walk, for which her team raised over $17,000 to help find a cure. Reaching out to others, Judy believes, makes a difference — in their life and yours.
Judy’s story is featured in "Proud Hands." If you would like to read Judy’s full story, please learn more about getting a copy of the book.
Kate Kelsall’s best buddy is her faithful 30-pound accordion, which she has played across North America since being diagnosed with Parkinson’s in 1996. Through music, Kate, a Northglenn, Colorado native, is able to spread joy to others. And for that, she is proud. Read more >>
Kate’s love for solo accordion performances has earned her 29 trophies, not to mention the opportunity to play in cities such as Puerto Vallarta, Mexico and Vancouver, British Columbia. Along the way, she has connected with Charlie Nimovitz, the only other living accordion player with PD. Kate’s life continues to be a medley of adventures.
Kate’s story is featured in "Proud Hands." If you would like to read Kate’s full story, please learn more about getting a copy of the book.
When doctors told her she had Parkinson’s at age 33, Kelly Maurer didn’t want to believe it. In her mind, the disease didn’t affect young, new mothers. Kelly, who lives in Perrysburg, Ohio, has since discovered a new set of talents and creative outlets in her life. The most important of those is motherhood. Read more >>
Kelly’s five-year-old daughter provides avenues to many activities in Kelly’s life. It’s the ability to wrap her arms around her daughter and clasp her hands that gives Kelly the most strength. She accepts PD, but doesn’t let it stop her from moving forward.
Kelly’s story is featured in "Proud Hands." If you would like to read Kelly’s full story, please learn more about getting a copy of the book.
A diagnosis of PD at age 45 isn’t about to stop Lori McWilliams, an active mother of three and seasoned educator. In fact, this Allen, Texas woman’s determination paved the way for better eating patterns, lots of exercise and less stress. Now, she’s in better physical condition than most of her friends. Read more >>
Favorite activities such as signing (she holds a degree in deaf education from Texas Tech University), painting and bike riding take longer and require more effort, but doing them makes her feel alive. So much so that she’s on a mission to fight the symptoms of her disease and make the most of the present.
Lori’s story is featured in "Proud Hands." If you would like to read Lori’s full story, please learn more about getting a copy of the book.
Marie Oben has a knack for baking — especially brownies. That knack has since turned into a recipe for success for Marie and her family. What started as a yummy batch of brownies baked with her daughter is now a thriving home-based business that sells around 20 different kinds of desserts, from tres leches to wedding cakes. Read more >>
Little by little, the Oben family (who hail from Guayama, Puerto Rico) is building toward opening a fine bakery. That means Marie’s hands are constantly crafting delicious treats. In spite of her PD, she’s savoring each sweet second!
Marie’s story is featured in "Proud Hands." If you would like to read Marie’s full story, please learn more about getting a copy of the book.
For Paul Zeiger, yoga is not only a passion but a way of life. Having taught it for over 16 years and practiced for over 20 years, a diagnosis of Parkinson’s wasn’t exactly a sign that he could continue. However, he did the exact opposite. Read more >>
Recently, Paul and his wife, who also practices and teaches yoga, have created a program for others with Parkinson’s to maintain and improve their flexibility, strength and balance. All taught in a fun and accessible way at an affordable fee, they even offer it to caregivers.
Paul’s story is featured in "Proud Hands." If you would like to read Paul’s full story, please learn more about getting a copy of the book.
For Sam Erwin, each day begins when she commands her arms to move above her head and breathe. With these yoga stretches, she finds her center. It’s these small moments — and movements — that she treasures the most. Read more >>
Through her own experiences with PD and her employment with APDA’s Des Moines, Iowa chapter, Sam knows first-hand how difficult it can be to stand up, much less move. However, simple actions of the hand such as introducing yourself, returning an e-mail, passing out a helpful brochure or sharing support by picking up the phone, all touch someone in some way. These movements have gone a long way in Sam’s life.
Sam’s story is featured in "Proud Hands." If you would like to read Sam’s full story, please learn more about getting a copy of the book.
I have Parkinson’s disease (PD) and I have an assistance dog, Honey Bear. Honey Bear assists me with my gait. I actually walk without the infamous Parkinson’s shuffle now that I have her by my side. Read more >>
She is with me 24/7. We do lots of volunteer work advocating for PD and educating children. Honey Bear and I work (volunteer) weekly at a school and at the library. At school we listen to children read. Reading to a dog, especially Honey Bear is really cool. The children love it and then actually enjoy reading. To help the cause to find a cure for Parkinson’s disease is a passion. We give speeches, visit with government officials, do interviews on radio and TV all to raise the awareness of PD in the community. I am on the Board of Directors for the Parkinson Association of San Diego. Honey Bear and I have a team for our annual walk. We raised over $75,000 the past five years. We have a rewarding life. Parkinson's disease won’t slow us down.
My story starts in 1996 with two grand-mal seizures and a diagnosis of Epilepsy. After many years of non-connecting symptoms, I finally started a Parkinson’s disease medication in May of 2006. Five months later I stumbled onto a medical research website that at the time had 267 members in its PD community. Read more >>
I made instant friends with people I would have never met had it not been for God and this disease. I soon learned that the cure is not always in medication but more often in a one-on-one relationship with a friend. Did I mention there are now 3700 members in that PD community? In March of the next year, they opened a Moods community in honor of my birthday and I was hooked. I was a lifetime member of Patientslikeme.com and a "fight to the death" advocate for the cure. My journey has led me to conferences coast to coast: PAN forums in Washington D.C. and two Unity Walks in New York City. I also write three blogs:
• http://justmeantiques.blogspot.com
• http://my.stltoday.com/pokietoo
• http://justpokietoo.blogspot.com
My motto is "Together in Strength, Forward in Hope" and with that and God may we beat this dreaded disease. Pokie
My wife and I have worked as a team for 21 years of marriage. When I had to confront the fact that my wife has PD, many things went around my mind. I thought about how things will change in our lives. But after acceptance and hope, nothing was going to change our plans with our kids. Read more >>
Marie always had put all her effort in her work, house chores, and especially her family needs. But after 3 years, things had changed. Marie is more rigid on the right side of her body. So, I had to start taking over some tasks. She keeps trimming her favorite bushes, planting, and doing a lot of arts and crafts such as sewing baby clothes. But, she needs my support in helping her fold the clean clothes, preparing dinner, and providing moral support, which I consider the most difficult part. I understand her ups and downs, her frustrations, and her need for love and affection. As time goes by, my heart is attached to her and we are hand in hand together. My hope is that as a family, we can enjoy a healthy Marie, and be able to live a pleasant life with her. I love and thank her for being brave every day. God will help!
Rappin’ One two three My name is Sharon Kha and they all knew me. I used to be the spokesman for the university But you can tell that you’re a Parky When your writing’s getting small And you have a little tremor and a tendency to fall And your posture’s getting rigid and your pace is getting slow And your aggravated colleagues nag, “Come ON let’s go!” Read more >>
Well my substantia nigra lost its pigmentation And I became a Parky—what a lamentation But I’ll fight it and you’ll never see capitulation. There are medicines of course but the dosage is tricky When you titrate up you have to be picky. If you don’t get enough your feet’ll freeze ya In the middle of the night a cramp’ll seize ya About the time you get enough to please ya That infernal compound gives ya dyskinesia Well our hands are shaky And our speech is slow And we have hallucinations And our feet won’t go But if we laugh at ourselves without much fuss We may have Parkinson’s; It’ll never have us!
My Parkinson’s name is Sass. That is short for Sassafras. To tell how the name got started would take too long so I will leave that for another time. I was diagnosed in 2002 as were so many others I have met. Read more >>
It must have been a good year for PD. The news stunned me. How unbelievable, no one I had ever known had this disease. What was it and what was going to happen to me? We left the doctor’s office and I don’t even remember talking all the way home. That night I broke down and cried in my husband`s arms. That was my pity party. Now there are things I thank PD for. The most significant reason is my ability to write. I have found that blogging and journaling are very good for anything that ails you. I have written poems and stories. God has given me the purpose of writing skits and plays for church, which is where I find true enjoyment. It is amazing how many stories you can make humorous from the bible. It has to make you giggle or smile or I haven’t been successful. Life is good. God bless Sass.
What daily victories do you celebrate? Tell us about your proud hands.
Get your copy for $15 and show your proud hands.